colette kern said: January 6, 2010 4:27 pm PST
Dear Carol, I am truly moved as I read about your loss, your life, and your hope and courage. I send you many many blessings and am amazed to have heard from you at this time in our lives. I pray that Nathan will attain health. 20 years ago I gave birth to a severely micropcephalic, (small brain) medically fragile daughter, Simone, who is also my joy, and a truly enlightened being. I live with my husband and about 12 nurses who come in and out of my house. LIttle did we know when we were children that we would have adulthoods so filled with both loss and with hope and love. I look forward to perusing your sight more thoroughly and reading your beautiful offerings. Many blessings to you and your family. love, colette